The MSUD Family Support Group is an international nonprofit organization that provides support, education, advocacy, and research opportunities for individuals and families affected by Maple Syrup Urine Disease (MSUD), a rare inherited metabolic disorder. The organization connects patients, caregivers, medical professionals, and researchers worldwide to improve care, advance treatment options, and strengthen the community for people living with MSUD.
What They Do
The MSUD Family Support Group is a mostly volunteer-run nonprofit that has served families and professionals worldwide since 1982. The organization provides resources for managing Maple Syrup Urine Disease (MSUD), including information about diagnosis, treatment, nutrition, pregnancy, sick-day management, and long-term care. Families can also access clinic directories, webinars, videos, and practical guidance developed with input from medical experts.
The group promotes research aimed at improving treatments and finding a cure for MSUD. Its work includes a patient registry, research projects, the MSUD Science Summit, and collaborations with clinicians and researchers. The organization also brings the community together through virtual meetups, newsletters, educational events, and biennial symposiums. At its 2024 MSUD Symposium, 194 people attended, including families and professionals from 21 U.S. states and six other countries.
Advocacy is another focus, with efforts to raise awareness of the needs of people affected by MSUD and improve access to care and resources. The MSUD Family Support Group is a registered 501(c)(3) nonprofit organization with EIN 54-1556981. It relies on donations and volunteer support to maintain its programs and activities. To learn more about the organization, visit the MSUD Family Support Group’s official website at https://msud-support.org/.
Your Donation
When you donate your vehicle through NCS Vehicle Donations, the proceeds go directly to the MSUD Family Support Group to fund its programs and operations. Your donation funds educational programs, research initiatives, and community activities that connect families, clinicians, and researchers. It also supports the patient registry and biennial symposium, which provide opportunities to share information, discuss research, and strengthen connections across the MSUD community. Free vehicle pickup is included, and your donation is 100% tax-deductible.
Thank You
Thank you for supporting the MSUD Family Support Group through your vehicle donation. Your generosity sustains programs that provide information, connection, and hope to families affected by MSUD around the world. If you have questions about the donation process, vehicle eligibility, or tax receipts, please visit our FAQ page.
